We can Support Each Other
We can connect you with other patients and families for support, inspiration, information about AS, and to share experience. Becoming part of the Alport Foundation's community is so important to reduce the feelings of distress, isolation and uncertainty that can come from living with Alport Syndrome. Become a member of the Alport Foundation of Australia’s network. Together we can support each other and make a difference.
Register your support by completing the online community membership or downloading the ALPORT FOUNDATION COMMUNITY MEMBERSHIP form.
Why Register?
1) To communicate with other patients and families affected by Alport Syndrome
2) To tell us more more about yourself and your interests in the organization
3) To be informed about the Foundation's activities.
4) To receive periodic newsletters and other information
5) To assist in the fundraising activities of the foundation
6) To be more involved
7) To tell us your family story
Postal Address:
PO BOX 3277
Valentine,
NSW 2280
AUSTRALIA
Email: info@alport.org.au
Our Website: www.alport.org.au
Facebook: Alport Foundation of
Australia
KIDGEN
KIDGEN is a collaborative formed in 2017 to improve care outcomes for genetic kidney disease (GKD). The collaborative under the leadership of Prof. Andrew Mallett is built up from one hundred clinicians, researchers and scientists. The collaborative has helped approximately 1000 patients nationally throughout Australia take part in cutting edge research studies with about a quarter recieving a diagnosis from these studies. KIDGEN is focused on providing a diagnosis to as many people with genetic kidney disease as possible in Australia, through cutting-edge research. At the same time, the team ensures everything they learn is made available in the health system. Visit the KIDGEN patient page for participating clinics around Australia and links to information regarding genomic sequencing.
KIDGEN website:https://www.kidgen.org
AGSA
The Association of Genetic Support of Australasia facilitates support for those affected directly or indirectly by genetic condition throughout Australasia.
AGSA is a network of people who are affected by genetic conditions, either directly or indirectly. They have built up a contact register with over 850 genetic conditions plus 250 rare chromosome abnormalities. Visit the AGSA website or email them at info@agsa-geneticsupport.org.au
Centre for Genetics Education
The Centre for Genetics Education is dedicated to providing current and relevant genetics information to individuals and family members affected by genetic conditions and the professionals who work with them. Based at Royal North Shore Hospital in Sydney, the Centre's research and educational activities aim to bring genetics information to the widest audience possible.